Trustees

Day-to-day management of the Albinism Fellowship is handled by the board of trustees.
If you wish to contact any of the trustees, please see the contact details on the Get In Touch page.

Akeel Bari

Akeel Bari

My wife and I became members of the Albinism Fellowship in 2008, this was after the birth of our son who had been born with albinism. Our very first meet was the London BBQ, this was our first time that we had the chance to meet other families and what a great day we had. We gained lots of support, had a great chat and got lots of useful information and most of all, met great people, ever since we have never looked back.
After completing my BSc Degree in Technical sciences, I am in full time employment since 2000. The opportunity arose to join the Board of trustee’s in 2014, so I am a newcomer to the Albinism Fellowship’s Board of Trustees.

Joanne Bennett

Joanne Bennett

Treasurer

My husband Andrew and I joined the Albinism Fellowship about three years ago after our eldest daughter was diagnosed with albinism a few months after her birth.
The diagnosis came as quite a surprise, and it was a considerable relief to find there was a group of friendly, warm and knowledge people out there who had dealt with the same issues and could provide a practical support network. We officially joined the Albinism Fellowship 'family' in 2009 at the busy Chester conference, which was a great opportunity to meet other families, make friends, network and become part of something special.
After our second daughter was born in 2010, also with albinism, I decided I would like to become involved with the charity on a more formal basis and was pleased to become a trustee in 2011. I currently work as a trainer helping improve the skills of sales people who work for a major pharmaceutical company so will be drawing on my training, coaching and sales and marketing skills to support the Fellowship. Before this, I worked in a variety of sales roles for the industry.

Rosaleen Dempsey

Rosaleen Dempsey

Ireland Co-ordinator

I have been the Albinism Fellowship contact person for Northern Ireland since 2005 and a trustee since 2007/8. I featured in the Real Lives book published by Albinism Fellowship in 2005 and have taken part in subsequent work to raise a positive awareness of albinism as part of the media advocacy group. I work for RNIB NI as Children and Youth Service manager, providing services and activities for blind and partially sighted children, young people and their families.

Will Fellows

Will Fellows

Marketing & Fundraising Co-ordinator

We have been members of the Albinism Fellowship since our eldest son was diagnosed with albinism at 6 months of age in the late '90s. The support given to us both at the first conference in York was invaluable. Mixing informally with other families who had children with albinism as well as young adults and parents with albinism gave us practical knowledge we were unable to find elsewhere.
I was pleased to become a Trustee in 2010 and hope to bring some of my work skills to the Board; I have worked in the water and renewables sector for the past 20 yrs and currently manage a 2MW anaerobic digestion business.

Daniel Hill

Daniel Hill

Online Co-ordinator

Daniel has been a member of the Albinism Fellowship since he was two years old, along with his mother Hilary and younger brother Martin (who also has albinism).
In 2001, Daniel took on responsibility for maintaining the Fellowship’s website and in 2009 became a Trustee with responsibility for the Fellowship’s online presence (which, alongside the website, also includes social networking sites.
Daniel currently works as a software developer for CME Group and, in his spare time, volunteers for the London Transport Museum.

Caroline James

Caroline James

Membership Co-ordinator

My husband Paul and I joined the Fellowship shortly after our son was born.
We have found it to be a lovely, friendly organisation bringing us into contact with other families and making like minded friends along the way. The moment we attended our first London BBQ and saw all the children dangling off the climbing frame was a huge point of reassurance for us, and a s family we have not looked back since.
I work as a General Manager in Distribution for a large national retailer and use those commercial skills in my role as a Trustee, joining the board in 2015.

Karina Lang

Karina Lang

I am all about the events, logistics and planning.
After completing a degree in events management, I now work for the Royal Microscopical Society, organising educational courses.
I love a challenge and trying new things, past activities including canoeing, hiking, baking and most recently playing Goalball.
I have been part of the Fellowship since I was a baby, and recently become a trustee. As the youngest trustee I like to think I keep the Fellowship 'on trend' and up to date with the latest fashions and event ideas.
So If you have an events or planning related question, please do get in touch.

Roselle Potts

Roselle Potts

Chair

I am a Mum of six children ranging in age from 4 to 27. We live in South East London.
My 6 year old, Precious, has Albinism and we have really benefited as a family from the opportunities provided by Albinism Fellowship over the past few years.
I have worked as a solicitor for many years and also bring this experience to the Trustee Board.

Mark Sanderson

Mark Sanderson

Vice-Chair & Conference Co-ordinator

Mark has been a very active committee member since 1995, first as Secretary and then as President/Chair and also had a spell as Treasurer. He is now the Fellowship's Conference Co-ordinator and has been instrumental in developing our bi-annual conferences.
Mark has a busy job as a senior manager with Guide Dogs, from where he brings a lot of relevant experience to the Fellowship. He heads up Guide Dogs' services across Berkshire, Buckinghamshire, Oxfordshire, Surrey and West Sussex.
Mark is married to Lorna (also an active AF volunteer) and has a son, Edward, who was born in 2008 and also has albinism.