Links

For links to albinism support groups outside the UK, please see the Albinism Around the World page.

If you would like to suggest a link, please get in touch.

Albinism Information

Albinism Database albinismdb.med.umn.edu	Genetic information from the International Albinism Centre.
Albinism in Popular Culture www.albinism.org/popcult	The purpose of this site is to explore the mythology of albinism, to take an in-depth look at the various ways in which this unique trait has been perceived and presented.
Positive Exposure www.positiveexposure.org	Positive Exposure, founded in 1997 by former fashion photographer Rick Guidotti, challenges the stigma associated with difference by celebrating the beauty of human diversity.
Albus www.albinismo.it	Italian site on albinism. (Text in Italian)
Hermansky Pudlak Syndrome Network Inc www.hpsnetwork.org/	Hermansky Pudlak Syndrome (HPS) is an extremely rare form of albinism, which can involve a variety of complications associated with bleeding and respiratory disorders. The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for people and families dealing with HPS and related disorders such as Chediak Higashi Syndrome. The UK Co-ordinator is Chris Fenlon, who can be contacted by e-mail at bigrevschris@btinternet.com for more information.

Products, Services and Exhibitions

Calibre Audio Library www.calibre.org.uk	Postal lending library offering a large choice of audio books in open formats.
Cobalt Systems www.cobolt.co.uk	Supplier of products for the blind and visually impaired.
Dolphin Computer Access www.dolphinuk.co.uk	Supplier of computer software for people with visual-impairments.
Humanware www.humanware.com	Supplier of assistive technologies for the blind and visually-impaired.
Naidex www.naidex.co.uk	UK’s largest event for homecare, disability and rehabilitation.
Optelec www.optelec.co.uk	Suppliers of assistive technologies and software for the blind and visually-impaired.
Sunsibility www.sunsibility.co.uk	Supplier of UV protective clothing, sunscreen and other UV protection products. Albinism Fellowship members can get 10% off by entering the discount code 'ALBINISM' when placing their order.
Visualeyes www.visualeyesuk.com	Visualeyes provide technology to assist partially sighted and blind people. They supply an extensive range of hardware and software products for all age groups and abilities, from high-end professional office solutions through to simple low cost solutions for home users.

Other low-vision and disability organisations

Action for Blind People www.actionforblindpeople.org.uk	UK charity which provides free and confidential support for blind and partially sighted people in all aspects of their lives.
British Assistive Technology Association (BATA) www.bataonline.org	Industry body with the aim of raising the awareness of assistive technology
DirectGov Disability Site www.direct.gov.uk/en/DisabledPeople	UK Government website with information for people with disabilities.
Genetic Interest Group www.gig.org.uk	The Genetic Interest Group (GIG) is a national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.
LOOK www.look-uk.org	UK organisation providing support to parents and carers of children with visual impairments.
National Blind Children's Society www.nbcs.org.uk	Charity providing information, advice, support and services for visually impaired children. Help offered to families, carers and professionals.
Nystagmus Network www.nystagmusnet.org	Nystagmus Network is a UK-based self-help group set up in 1984, providing support for adults and children with nystagmus, their parents and teachers and fostering research into the condition.
Royal National Institute of Blind People (RNIB) www.rnib.org.uk	RNIB is the UK's leading charity offering information, support and advice to over two million people with sight loss.