Albinism Fellowship Home Page

Welcome to the Albinism Fellowship website.

The Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. We also provide information about the condition to professionals working with people with albinism, and other appropriate interested parties.

Our focus is on the United Kingdom & Ireland, but we also work closely with other albinism support groups around the world.

For the latest news from the Fellowship and details of upcoming events, please see the News & Events section.

For information about our mission, the services we offer, how to join and how you can support our work, please see the About the Fellowship section.

For general information and articles about albinism, along with personal stories from people with albinism, please see the About Albinism section.

If you have any queries about albinism or the Fellowship, please get in touch.

Latest Updates:

13/06/2019 - Happy International Albinism Awareness Day
See a message from our chair.

10/06/2019 - Still Standing Strong:
Albinism organisations from around the world, including Albinism Fellowship, have published a joint declaration ahead of International Albinism Awareness Day on Thursday 13 June.

23/05/2019 - NEW EVENT: London Summer BBQ & Get-Together in Carshalton, South London, on 15 June.

12/04/2019 - Bookings for 'This is Me', our 2019 Adult & Family Weekend Conference, are NOW OPEN!

25/03/2019 - NEW EVENT: Ireland Get-Together in Galway on Sat 27th April.

16/03/2019 - NEW EVENT: Derry/Londonderry Albinism Information Day on Sat 30th March.

01/03/2019 - NEW EVENT: Spring Nature Trail Meet-Up on Sun 28 Apr at High Elms Country Park near Bromley.

13/01/2019 - NEW EVENTS: Saturday Lunch in Kent and Sheffield get-together

13/10/2018 - The 2017/18 Annual Report and Financial Statements are now available for download.

09/10/2018 - Researchers at the University of Bradford are looking for people with Ocular Albinism to participate in a study. See News Page for more details and how to participate.

04/08/2018 - NEW EVENT: Christmas Gathering & AGM in Nottingham on 24th November.

20/06/2018 - Today is Nystagmus Awareness Day. Find out more at the Nystagmus Network website.
We want to make it clear how we use your personal data, so we have updated our Privacy Policy.

13/06/2018 - Happy International Albinism Awareness Day!
We are pleased to announce that our 2019 Adult & Family Weekend Conference, 'This is Me!' will take place 18-20 October 2019 at the Hayes Conference Centre in Derbyshire.

06/06/2018 - One week until Albinism Awareness Day! - New Guest Blog from our Chair.

02/06/2018 - Join the 'I Look Out For Albinism' campaign to celebrate International Albinism Awareness Day on 13th June.
We have produced an All About Albinism downloadable presentation, aimed at school-aged children. Great for raising awareness on June 13th.

14/05/2018 - NEW EVENT - Albinism Awareness Fun-Day in Coolock, Dublin on 9th June.

19/04/2018 - Due to unforeseen circumstances, the Derry/Londonderry event this weekend has been postponed. We'll announce a new date shortly. Apologies for any inconvenience.

27/03/2018 - New media opportunity for AF members and supporters - Same But Different.

25/02/2018 - EVENT UPDATES - Full details added for the Glasgow and Bournemouth summer events.
NEW EVENT - Thames Valley Summer Get-Together and BBQ at Thames Valley Adventure Playground in Taplow on 23 Jun.

16/02/2018 - EVENT UPDATES - The venue for the Belfast Information Day on 9th June has changed to the La Mon Hotel & Country Club.
Full details added for the Irish Summer Get-Together in Dublin on 26 May.
Sadly, due to lack of bookings, we have had no choice but to cancel the Young People's Activity Break in April.

30/01/2018 - NEW EVENT - Sheffield Get-Together on Sat 17 March.

06/01/2018 - NEW EVENT - Saturday Lunch Get-Together at the Toby Carvery in Sevenoaks, Kent on Sat 10 Feb.

03/01/2018 - Happy New Year! The Albinism Fellowship 2017 Annual Report & Accounts is now available for download.

14/12/2017 - NEW EVENT - Under-Fives get together in Woolwich, SE London on Sun 28 Jan.

08/11/2017 - NEW EVENT - Ireland Christmas Get-Together in Portlaoise, Co Laois on 25 November.

06/11/2017 - Over-60s with albinism sought for a research project. Please see the News Page for details.

26/10/2017 - Presentation slides and media links added to the Adult & Family Weekend Conference page.

24/10/2017 - Details of a great opportunity for young people attend a pan-European albinism event added to the News Page.

12/09/2017 - The booking deadline for our Adult & Family Weekend Conference has been extended to Sunday 1st October. Book your place now!

29/08/2017 - Added more information on the Programme for Family Weekend Conference in October. Bookings close on 20th September, so don't delay!

For information about how we use your personal data, please see our Privacy Policy.

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All material on this site is Copyright © Albinism Fellowship unless otherwise stated. Unauthorised reproduction of any part this site, including photographs, is prohibited. Some photos on this site are courtesy of Positive Exposure - reproduction prohibited.
Website designed, built and maintained by Daniel Hill: All general enquiries should be e-mailed to
If a photograph of you or a member of your family appears on this website it has been placed here in good faith, should you not wish any photo(s) connected with you to be used on the site, please e-mail us and we will remove it as soon as we can.

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